Growing Deeper Roots: My Story of Invisible Illness

When people talk about the "isms" in society, racism and sexism are usually the first that come to mind. Later in the list comes agism. Often forgotten and misunderstood, is ableism.  Ableism: Discrimination in favor of able-bodied people.  In the last 9 months of my life, I have thought a lot about ableism. A year ago, when I whole-heartedly identified myself as "able-bodied," I never even considered the nuanced meanings of "disabled" or "abled." I assumed that, like the other "isms" I've learned about or experienced, the categories were cut and dry. You were either "able-bodied" or you were "disabled." I never imagined that I would one day live in the hell that is the grey area.  On my worst days, I am undeniably disabled. I am in bed or, if I must go out, I'm in the wheelchair. On my best days, I am walking on my own and participating in society like an able-bodied 20 year old. That lasts for about ...

"Everything happens for a reason." -Someone who has never mourned.  This dangerously misled and shallow misinterpretation of life is nothing less than emotional, spiritual, and psychological violence. It is nothing less than utter bullshit.  Whether you are mourning the loss of a loved one or a failed relationship or your lost health, this is the last thing you want to hear but it will be said to you. Someone out there with their incredibly naive perception of reality and Pollyanna outlook on your tragedy will utter this bullshit in response to your pain.  "Everything happens for a reason," "God has a plan," "This pain will make you a better person," and all your other painful paradoxical platitudes will not make it easier for me to watch my life shift in response to my lost health. All you are doing with these phrases is replacing my grief with unsolicited advice.  Now, I'm not saying that I do not recognize that I have grown immens...