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Showing posts with the label hydration

Dysautonomia Awareness Month

Sometimes, the hardest part about being sick the way that I am is that on most days, I don't look sick. I suffer from an invisible illness. Those who I haven't told, don't know that I'm sick and those who do know, rarely understand the severity.  In my last few months, I have felt misunderstood, doubted, and judged because I can't do what a healthy person can...and yet, I look healthy. Managing my invisible illness, neurocardiogenic syncope (whether from a virus producing POTS or from my pituitary macroadenoma) would be significantly easier, if people understood it. Unfortunately, I have rarely met anyone who has any familiarity with dysautonomia.  Dysautonomia is an umbrella term used to describe several different medical conditions that cause a malfunction of the Autonomic Nervous System. The autonomic nervous system controls "automatic" functions of the body like heart rate, blood pressure, digestion, pupil dilation and constriction, kidney func...

Is my wheelchair historically accurate?

Today, I went to Rose Hill Manor's World War II weekend. I love that era of history and so does one of my oldest friends, Brooke. We used to stay up and watch old 1940s movies, we took a WWII class in high school, and we've made countless Hitler memes. So today we went to the reenactment and toured the museum.  My sisters and my friend Erin work at this Museum and were dressed up to work the festival.                                       <-Look! I'm standing! While most of the park was wheelchair accessible, it was not exactly wheelchair friendly. The paths between tents and exhibits were gravel, and the chair did not move easily through it. Likewise, every park or field or yard in Frederick County is ridden with hills. Wheelchairs don't like hills. Also, the top floor of the manor house, built in the 1790s, was not accessible. (Come on 18th century architec...