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It's Been a Long Year

I have official met my 1 year mark. March 30, 2015 was my first syncope episode. I had fainted occasionally before this date, but this was the real onset of my chronic syncope and the beginning of the end of normalcy. I fainted again April 1st, and then again on April 5 (Easter). After fainting in front of my mother, we started the long, drawn out process of a searching for a diagnosis. 

It's fair to say that we still haven't gotten one. We've gotten 100, and none of them come with a treatment plan or a cure or a solution. 

Dysautonomia, chronic hypotension, POTS, pituitary macro-adenoma, prolactinoma, neurocardiogenic syncope...the list goes on. But it never reaches a point of progress towards health. 

I'm still waiting to hear back from Vanderbilt. We were told that we would get a treatment plan within a week. Tomorrow it marks 3 weeks from our appointment and we are still waiting. 

I still faint about 1-2 times a week. I still can't figure out how to stop it. I still don't know when or if it will go away. I'm in disability purgatory. 

As I enter the last half of my last semester at WAC, I've been feeling very reflective and introspective. My time here wasn't at all how I thought it would be. I never got out of the country, like I thought I would. I never got involved in SGA, like I had in high school. I didn't spend my free time sailing or canoeing. I never had free time. 

When I think back on the last year of my life, all I can remember is being sick. Canceling trips because I couldn't trust that my body could manage it. Bumming rides with people because I couldn't drive anymore. Struggling across campus in my wheelchair. Going to bed early because I had a migraine. Feeling isolated, because there aren't a lot of 20 year olds who answer "what are you doing after college?" with "It depends on my health."

So I'm back at the same circle of worry that I always am: the future. I know that it is perfectly normal to be afraid of graduating and nervous about entering the real world. And I know that I should look at this ending with excited wide eyes and eagerness for more opportunity. But that is a hard task when every possibility is tied to the condition of my unpredictable health. It is a puzzle no one can solve. Furthering my isolation is the bittersweet fact that I am graduating a year early and all my close friends will still be at WAC, together and without me. I know it's silly, but I know fully well that, come September, I will feel lonely, isolated, and more than a little bit envious. 

When I think back on the last year, I don't feel any of the things I know I should. I don't feel proud, or grateful, or blessed, or satisfied. I feel overwhelmingly angry and bitter and exhausted. I feel lost and hopeless and spiteful. 

Today, I'm not feeling very bright. Maybe tomorrow will be better. Until then, here's a song I've had on repeat today. Maybe I will reach the "And I'm finally ready to be here" part of my life someday. 


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