Skip to main content

My first week of classes

I have finished my first week of classes post illness (I say post, as if I'm out of the woods, I'm not). I'm only taking 3 classes this semester since I am now working on my thesis. Sooo...that's still 20 credits. Whoops.

Luckily, classes are interesting. I'm taking my senior seminar, environmental economics, and congress and the legislative process. I'm also auditing media and politics because it just sounds so interesting and I'm a huge dork.

It's very hard to get around campus on my own. I'm not confident about walking without the chair alone so I'm still in it most of the time. While this makes my arms look fantastic, I'm tired almost all of the time. Luckily, I have possibly the best group of friends in the entire world. There have been numerous times when I have just gotten too tired to wheel back to my dorm and I've texted my friends and they've dropped everything to come help me. There have been a similar amount of times that I have gotten back to the suite and just needed a hug, they're there for that too.

When I came back to school, I told my suitehearts (my name for my suitemates because I'm obnoxiously and nauseously in love with these girls) about my PT plans here. I was hoping that they would be willing to help me safely do some of the exercises, like my aqua-therapy and core workouts. Well, in their typical fashion, they did me one better. Every night, when I roll out my yoga mat to do my PT exercises, my suitehearts roll out theirs and join me. We've come up with a system to determine if it's safe for me to do my PT everyday, we vote. My suitehearts are always looking out for me; they push me when I need it and then slow me down when I'm too stubborn to do it myself.

Throughout the week, every single day I experienced a roller coaster. I tried to wake up with a positive expectation for the day. I would leave my suite excited for classes and excited for the day. Then, the hot humid air would nearly-literally slap me in the face. The humid, heavy air makes it about 100x harder for me to breathe. By mid afternoon I would be tired and frustrated. I would be struggling to wheel myself back home and I would hit a bump in the chair that exemplified my incompetence.

But then, everyday...as if on cue, something would raise my spirits. An acquaintance would offer to help me. A stranger would compliment my maneuvering skills. Someone would hold a door for me or ask me how I am feeling in a way incongruous with a monotonous "How are you?" 

There is never a single moment when I know unwaveringly that I can do this. There is always a bit of fear in the back of my mind wondering when the other shoe will drop. Or, more accurately, when I will drop. I still faint every other day or so. But the overwhelming feelings of "Oh shit, I'm in over my head!" are starting to pass. 

At least until my next thesis deadline...

Comments

Popular posts from this blog

My first trip to Johns Hopkins

Hello outside world! It's the end of Day 2 in Johns Hopkins and I just got my laptop so here's the update.  After my lovely weekend with my friends, I spent most of Sunday relaxing on the couch. My BP was not great (78/49) and I spent a lot of the afternoon working to raise it (If I ever liked Gatorade, I don't anymore). After dinner I felt very ill. I got nauseous, with very little energy. I could feel my BP dropping so I spent the evening in the wheelchair. my vision went blurry and I couldn't focus on anything. In the middle of a conversation with Ally, I fainted in my chair. My family worked to pick me up out of the chair and lay me flat to try to regain consciousness. I was out for about 3 minutes and then spent another 20 minutes going in and out. When I tried to get up to use the bathroom after resting, I fainted again. I couldn't stand or walk or hardly sit up.  So we went to the Emergency room at Johns Hopkins Bayview Medical Center on Monday morning....

A new chapter and a new partner

It's been almost 2 years since I have posted to this blog. Believe me, I have tried. I have about 25 saved draft posts that never got published because they ended up sounding like the same repetitive story. Another pattern of rumination. Another soliloquy of self pity.  That's because the last three years of my life have been fairly cyclical and unchanged. I have a few good weeks where my symptoms plateau and I faint only once or twice a month. Then, a storm hits. I get a cold and I crash into a regressive phase where I faint daily, injury myself, get frustrated, and then slowly move back up to the plateau.  I have been tired and frustrated as I put grad school on pause, as I continue living with my parents, as I take three steps forward 2 steps back. So I stopped blogging and started to do what I could to move forward, pretending I am not sick, and working on ways to get healthier like a normal 24 year old. But still on pause.  But over the last few weeks, ...

Fall update

Okay, so I'm starting to run out of ways to say "I haven't written in a while." I have also run out of excuses. The last time I wrote, I had the excuse that I didn't have any internet all summer so I couldn't post. Well...I moved out of that house August 15th...so that doesn't work. No excuses. I'll just catch you up. I spent the last month of my job at WAC in a cute 1 bedroom apartment in Chestertown. I got to live alone, cook for myself, shamelessly sing in the shower, and host girls-only wine nights. It was a lot of fun but by late September, I was ready to move on from WAC. So I did. Yesterday, I started a new job as the Legislative Director of a Delegate for the Maryland General Assmebly. Onward and upward.  But first, I'll make it up to you for neglecting you for so long. Feast your eyes on a photo-list of all the wonderful happenings since mid-July.  1. I helped one of the best people I know move out of his house in Chestertown and ...