The pituitary center

Well, we finally got into the Johns Hopkins' Pituitary Center. We made the appointment 6 weeks ago, that's how long the waiting period was.

After 6 weeks, a blood test, a 3 hour appointment, and one of the world's best endocrinologists, we haven't made any progress.

Dr. Salvatori diagnosed me with a prolactinoma, a pituitary adenoma that causes an imbalance in the prolactin levels. He did not see any issue with my cortisol levels or my adrenal gland. Normally, he world advise hormone treatment for this mass but the treatment has one concerning side effect...dizziness.

Due to my already oppressing syncope, we won't go forward with treatment for Voldemort. Instead, I will have regular hormone level checks and MRIs.

The good news? Tumors that behave this way, interacting with the pituitary, are very rarely malignant.

The bad news? We have no more leads for treatment of my syncope.

But hey, at least it's easier to catch yourself when you fall if you are empty handed.

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My first trip to Johns Hopkins

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Growing Deeper Roots: My Story of Invisible Illness

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